Mouth-watering Muscular Dystrophy quotations
We have common enemies today. It's called childhood poverty. It's called cancer. It's called AIDS. It's called Parkinson's. It's called Muscular Dystrophy.
If it came to a magic genie, I would ask him for two extra wishes.
One would be that no one would have to live with the muscular dystrophy disease or any disease. And the second one would be world peace, that we just stop fighting, talk about things, and we could live in harmony once again, like God intended us to do.
People need to remember that to balance the federal budget off the backs of the poorest people in the country is simply unacceptable. You don't pull feeding tubes from people. You don't pull the wheelchair out from under the child with muscular dystrophy.
I started bettysbattle.org, which is a charity in honor of my mom, associated with the Muscular Dystrophy Association, a charity that is near and dear to my heart. We turned to them for resources and information. They were there for us every step of the way, from the day that Mom was diagnosed. I formed a charity in honor of my mom and them. I'm the national ALS ambassador for MDA. I do their telethon every year.
A lot of times I say to myself, "I wished I could be worthy of all the compliments that people give me sometimes." I'm not inventing anything that's going to stop cancer or muscular dystrophy or anything, but I like to feel that my time and talent is always there for the people that need it. When someone do say something negative, most times I think about it, but it don't bother me that much.
Muscular dystrophy ... was never seen until Duchenne described it in the 1850s. By 1860, after his original description, many hundreds of cases had been recognised and described, so much so that Charcot said: 'How is it that a disease so common, so widespread, and so recognisable at a glance - a disease which has doubtless always existed - how is it that it is recognised only now? Why did we need M. Duchenne to open our eyes?'
Every year, once a year, in Maryland, I go for a week and overnight camp with about 50 to 60 kids with muscular dystrophy, all ages, seven to 21. And it is really fun. I have some great friends there and wonderful counselors.